I know I have many holiday updates to post, but this is most important. Caleb, son of friends Kari and Kanaan, was diagnosed with Spinal Muscular Atrophy in 2010. I met Kari and Kanaan through cousins Brandon & Nia - and must say, they never cease to amaze me. I am proud to be their friend - inspired by their service, courage, spirit, leadership, and strength.
Though their hearts break for their son - Kari and Kanaan constantly push through and are taking SMA head on. Please keep their family in your daily prayers and take part in their fundraiser to help find a cure for Spinal Muscular Atrophy. They will be hosting a SMA Eat n' Run in March in Columbus, Georgia. Find the event on Facebook.
Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure.
Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.
Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 65,000 members and supporters and has funded more than $50 Million in leading research programs since its inception.
No comments:
Post a Comment